Target: Dr. Russell Katz (Food and Drug Administration)
Goal: Demand FDA approve new drug for Duchenne Muscular Dystrophy (DMD)
Duchenne Muscular Dystrophy (DMD) is a rare genetic disease that causes the loss of muscle. If left untreated, people with DMD will slowly lose the ability to breathe on their own and, consequently, die. Fortunately, there has been a recent scientific breakthrough that shows a lot of promise in helping, if not curing, the disease. Please urge the FDA to speed up the process in approving this new ‘miracle drug.’
Max and Austin are two children who sadly have been diagnosed with DMD. Max, who is 10 years old, was fortunate enough to be a part of the trial for the new DMD medication. It’s been over 60 weeks since he started the drugs. Just this year in 2012, he was able to march in the Halloween parade; he was previously dependent on a wheelchair. On the other hand, his older brother, Austin, who is 13 years old, has not been getting any better. Every day his disease grows progressively worse since he has not been able to be a part of the drug trial for the new DMD medication.
The FDA passed a law to accelerate the approval process for certain medications that help fatal diseases such as DMD. Each day is of utmost importance for people with DMD. Their muscles are deteriorating at a rapid rate. Please have the FDA hasten the approval process for this new medication. It will help thousands of people in the United States and boys, like Max and Austin, could have a chance at a brighter and healthier future.
Dear Dr. Russell Katz:
There are thousands of boys in the United States who are diagnosed with a rare genetic disease known as Duchenne Muscular Dystrophy (DMD). Fortunately, there has been a scientific breakthrough that has found a promising new ‘miracle drug’ that may help, if not cure, this disorder that debilitates and destroys muscles. Recently, there was a new FDA law passed that allows certain medications that aid fatal diseases, like DMD, to be approved quickly and more efficiently.
Max, a 10-year-old suffering with DMD, participated in the trial for the new DMD medication. It’s been over 60 weeks and he’s been able to walk without his wheelchair. On the other hand, his 13-year-old brother, who also was diagnosed with DMD, hasn’t been able to access this ‘miracle drug.’ Instead, his condition is getting worse every day. For these boys diagnosed with DMD, each day is of utmost importance. Please have this DMD medication approved quickly before it’s too late for these children to have a healthy future.
[Your Name Here]
Photocredit: epSos.de via Flickr