Increase Research Funding for Bone Marrow Failure Diseases

Bone Marrow Failure Diseases

Target: Members of Congress

Goal: Provide funding for research into damaging bone marrow failure diseases.

Acquired bone marrow failure diseases have a debilitating and often fatal impact on the 20,000 to 30,000 Americans diagnosed each year. Current legislation proposes to increase research funding in hopes of finding a cure for diseases that attack blood cell production within our bones. Please sign this petition and urge Congress to approve legislation allowing for more research into damaging bone marrow failure diseases.

California Congresswoman Doris Matsui has proposed an act inspired by Myelodysplastic syndrome (MDS), the bone marrow failure disease that took her husband’s life. MDS is a rare stem cell disorder that prevents blood cells from maturing and producing normally. Like most bone marrow diseases, there is little information on exactly how many people have MDS and what causes its diagnosis. Recently ABC anchor Robin Roberts announced she had the disease, and the late filmmaker Nora Ephron suffered from MDS as well. Matsui is supporting the legislation to increase funding in order to learn more about these diseases and the people affected, in the hopes of preventing death and finding a cure.

According to current information, white men over 60 years old are most often diagnosed. While advances have been made into these rare diseases, it is important that funding increases in order to learn more. As more and more Americans are diagnosed each year, this disease will require more attention. Please sign this petition and support increased funding to research debilitating and deadly diseases caused by bone marrow failure diseases.

PETITION LETTER:

Dear Members of Congress,

Each year 20,000 to 30,000 Americans are diagnosed with bone marrow failure diseases, often resulting in debilitating symptoms and death. Little is known about these rare diseases and increased research funding is necessary now, as the numbers are expected to increase with the general public’s age. A better understanding of bone marrow disease is necessary in order to treat symptoms, prevent disease, and find a cure.

California congresswoman Doris Matsui is pushing legislation to increase research around the bone marrow failure disease that killed her husband: Myelodysplastic syndrome (MDS). MDS is a rare stem cell disease that prevents blood cells from maturing and producing normally. Matsui believes that more knowledge and research is needed in order to prevent other American’s from loosing to bone marrow failure diseases.

Please support the Bone Marrow Failure Disease Research and Treatment Act to authorize increased funding research on acquired bone marrow failure diseases.

Sincerely,

[Your Name Here]

Photo Credit: Knomad via flickr

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52 Signatures

  • Marianne Oelman
  • Hermann Kastner
  • Eric von Borstel
  • Mal Gaff
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  • Terrie Phenicie
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