Target: Dr. Robert Califf, Commissioner of Food and Drugs
Goal: Approve gene replacement therapy in the United States so that tens of millions of Americans suffering from rare and fatal diseases may one day have a cure.
Over 30 million men, women, and children suffer from rare and deadly diseases. There are nearly 7,000 rare diseases Americans suffer from. Scientists, researchers, and medical professionals know very little about any of them. As a result, millions of Americans suffer and cling on to a hope that perhaps one day a cure will be found. Possible cures may be found through controversial gene replacement therapy, however, such a therapy has yet to be approved by the FDA.
As a result, Americans suffering from these rare diseases must spend thousands of dollars to travel the world to seek treatment in foreign countries. While not every treatment has been proven to work, others have. Men, women, and children battling rare diseases have been cured and able to return to healthy, happy lives.
Sign the petition to demand that the FDA approve gene replacement therapy so that American families are more easily able to seek treatments that may help them. For many of these families, even the hope of a possible cure is better than not being able to seek any cure at all.
Dear Dr. Califf,
About 30 million Americans, or 13 percent of our population, suffer from rare and deadly diseases, like infantile metachromatic leukodystrophy (MLD). A child suffering from this disease will die by the time he or she is six years old. There are over 7,000 other rare disease that are just as deadly.
However, gene replacement therapy may be able to provide some clues and cures, yet it is not approved in the United States. Families desperate to regain the healthy and happiness of their loved ones have traveled the world seeking treatment. The treatments they so desperately need should be available here, closer to home. Please take action to approve gene replacement therapy so that these rare diseases may one day disappear forever.
[Your Name Here]
Photo Credit: University of Michigan School of Natural Resources and Environment